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The Middle Aged Zebra

Explore tips on managing joint pain and stiffness in older patients with EDS through exercise.

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Living Life as a Middle-Aged Zebra. Every day is a new day, every day is a different day. All days are unpredictable. Plans are made some are kept, some are regretted, and some are declined.

  • zebrathemiddleaged
  • Mar 9
  • 1 min read

Updated: Mar 10


As those of you living life with EDS know we all have good days and bad days. We want to do a lot of things that sometimes our bodies just won't allow us to do. People around us don't always understand why so many cancelled plans. Sometimes it comes down to just not having the two days to recover from what the plans are today and knowing that resting today then tomorrow will be a better day!



Check back for more later.

 
 
 

2 comentarios


poohsword
10 mar

As somebody that has MS and been diagnosed with Trigeminal Neuralgia about 3 1/2 years ago, I relate to many of these good days and bad days. I completely understand the having the 2 days to rest up after a day that’s non-stop. It seems on the good days, I know I try to get as much in as I can because I will be paying for it the next couple days. Some days all I wanna do is sleep and that definitely is not always an option for me. I do cancel plans more than I want just because I have no energy. People don’t realize the energy it takes for us that experience these types of issues…

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zebrathemiddleaged
11 mar
Contestando a

Hi Anita, thanks for your thoughtful reply and for joining our community of people who have invisible illnesses. Since you mentioned that you feel like you may have other things going on I wanted to mention that POTS often accompanies MS due to ANS dysfunction caused by MS lesions. Read about POTS and see if you feel like that is something that you may have an issue with. If so, a test you can do at home is take your pulse lying and then standing and if there is a 30 bpm increase for adults, then you should speak to your MS doctor and be evaluated for POTS. The way to evaluate is a tilt table test. But read about…

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